I apologize for not updating the blog sooner with more information on what happened to Luke last week. We found out Thursday night that his bloodwork came back normal. That was really good news. The EEG was scheduled for today at noon at Cook Children's Department of Neuralsciences in Fort Worth. We are very thankful that it is over and done with. He had to be sleep deprived so I woke him up at 6 am and we went nonstop this morning. I wanted to get him worn out because they told me he had to be able to fall asleep there. I succeeded because the poor thing was exhausted by the time we got there, around 11:30 am. His appt was for noon.
Other than the convulsing and the not breathing and almost having to give him CPR, this was my worst experience as a mom. We had to lay him on a bed so the EEG tech could get the electrodes on his head. He did NOT want to lay there and he was PISSED that he had to. He cried and cried and cried and I was practically laying on top of him to keep him still. The tech had to measure his head, draw dots with dry erase marker, put a where she had put the dot, dip the electrode in putty, stick it on his head and then put tape on it. I lost count of how many electrodes were on his head. He did somewhat okay with the ones in his hair, but when she touched skin - his forehead and part of his cheek - he would FLIP. She did say that he did very good for his age - most kids are kicking and fighting her and Luke was pretty still except when he would get a new wind to cry and he'd move his head.
After everything was stuck on, she wrapped his head up. He looked SOOO sad. It was everything I could do not to burst into tears at the sight of him. Instead I took a picture with my phone:

The test began and we had to make him open his eyes for a bit, and then close his eyes for a bit. Of course, as soon as he needed to have his eyes open, he would squint them shut and cry. And when he needed them closed, he would open them and look around. I had to hold his eyes shut with my fingers, it was horrible. Then they put a flashing light inches from his face and he had to look into it while it flashed psychotically. That seemed to take forever and finally we got to the point where he could go to sleep. By this point he was exhausted and all he wanted was for Mommy to hold him so I scooped him up and sat on the bed with him. I cradled him in my arms and he fell asleep very quickly. That's when I almost lost it - he just looked so small and so big at the same time. Nate commented about how tall he is getting and I remembered being able to just hold him in my lap and now I could barely fit his torso in my lap. As I watched him sleep, he just seemed so peaceful and all I could see was his sweet face. I was just praying that he was forgetting everything that had just happened to him.
The sleeping part only lasted about 30 minutes and then the tech came in and turned the lights back on and filled a tub of soapy water to take the electrodes off of his head. He did not want to wake up and he screamed while she scrubbed his head down and removed the tape and the electrodes. I wished that we had buzzed his hair again so there wouldn't have been as much hair pulled during the process. Finally she was done and I picked him up and he immediately wanted Daddy to hold him. As we were leaving, he said "bye bye" to the tech and she handed him two car stickers, to which he replied, "thank you". That made his Mommy proud - using his manners after everything he had just been through. The tech even made a comment about how cute and polite he was and joked that she doesn't usually hear "thank you" from patients before they leave.
She said to call our pediatrician's office in 4-5 days to find out the results. She said it would take a little bit for the doctors there to review the results and then get them to Dr. Daniels. So now we are in the waiting game. My gut says that everything will be fine, but I will be relieved when we know for sure.
After the EEG was over, I wanted to give Luke a special treat so we headed to McDonald's for lunch. He just got brave enough to play in the play place by himself and there were no other kids there (a benefit to being out during naptime) so I let him have fun (and then doused him with antibacterial gel when he was done!) Then I let him get his first ice cream cone - he was sooooo excited!

Nothing like ice cream to make everything all better!